Surgery

I discussed the treatment options with Dr Rusbridge: to treat medically for pain relief or surgically by foramen magnum decompression. It was an agonising choice, but in the end I opted for the surgery in the hope that the progression of the disease could be halted or slowed down.

Decompression is major, invasive, pioneering and expensive surgery. Recovery can take many weeks or even months. It involves cutting a piece of bone from the back of the skull and top of the spinal column. The outer covering of the brain is also incised in order to remove adhesions which have formed on the surface of the brain. A patch is then placed over the incision site.

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